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Back to the Hospital
Today, exactly one week from the last time, I find myself packing for yet again a stay at the hospital. This time it is not for a scheduled event. This is the picture of my girl I choose to keep in...
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Hospitalization #5 Day 2
Shannie has made an amazing recovery, little man’s temp stayed down for 24 hrs. and he was off to school again today, thank goodness. Dare I hope they’ve kicked Influenza A’s butt? It’s likely a little...
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Here We Go Again – First Hospital Stay of 2015
Here we are 14 days in to the New Year and we are once again in the hospital. After an up and down week with increasing episodes of breathing issues we finally decided to go to the ER. We left home...
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A Night in my own Bed or How to get an Attitude Adjustment
Today I will stop the whining. We have so very much to be grateful for and in my exhaustion I forgot that yesterday. So, first let me update and then list some of the awesomeness we’ve experienced....
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Hospital Hostage – Day 9 – But There’s a Bright Light
On Friday evening I was sent home and Daddy-O spent the night with girlie. She had an episode, but for the most time they had a good evening. Lots of giggles. Daddy had recorded the silly voices that...
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Comfort Care Feels Very Comfortable
Such a very full day this has been. Shannie struggled much of the day with very high heart rates and labored breathing. After my insistence that we needed to talk to the palliative doctor – stat – a...
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Comfort Care at Home????
I’m doing it, I’m saying the “H” word. Home is very, very likely tomorrow. What a difference a couple days have made. For the second night girlie has been off the bipap and keeping her stats up with...
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Routine – Right……..
On Saturday we had a moment where we were reminded all is not well with our girl. Her stats dropped just a bit and she was in pain. Both were easily taken care of that particular moment. Both Sunday...
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Spring Break Stinks
I’ve been wracking my brain trying to remember what we did last Easter and then I remembered. Spring break last year we were in the hospital with Shannie. She had a total hip replacement and on Easter...
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Our Precious Shannie
One week ago tomorrow, Apr. 16, our Shannon’s struggles came to an end. She was every bit the warrior her last few days just as she’d been her whole life. She did not lose this battle, she surrendered...
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